Today is SUDEP Awareness day. SUDEP is Sudden Unexplained Death in Epilepsy. 1 in 1000 die from this yearly. Due to the kind of seizures I have; I am more at risk. While I am very close to double digits of seizure freedom and do a lot of things to protect myself, there is no way I can be 100% safe. The hospital for which I work for, and am seen at has a research study for SUDEP, which is awesome. More work needs done in this field. November is a week away; November is National Epilepsy Awareness Month. It’s no secret I’m proud to be epileptic.
I try not to worry about SUDEP because there’s really no signs, triggers, or warnings for it; but research is happening; a step in the right direction.